Washington, DC – Five lawmakers today introduced a bipartisan bill giving a full range of medical services to families with children who have life-limiting illnesses and who qualify for Medicaid, which currently has gaps in such coverage.

The Children’s Program of All-Inclusive Coordinated Care (ChiPACC) Act (H.R. 6560) would let states create comprehensive care programs for these children. Its authors are Representatives Diana DeGette (D-CO), a senior member of the House Energy and Commerce Committee, together with the Co-Chairs of the Congressional Childhood Cancer Caucus: Jackie Speier (D-CA), Michael McCaul (R-TX), G.K. Butterfield (D-NC) and Mike Kelly (R-PA).

“Families with children facing life-limiting illnesses need all the support they can get, and they should be empowered to seek out that support,” the bill’s sponsors said in a joint statement. “We owe it to these kids and their loved ones to help ensure more compassionate care in their most trying times.”

Gaps in Medicaid coverage of hospice and palliative services have deprived many beneficiaries of the care they need because the program does not cover some of children’s unique medical needs.

Under this bill, the family of every child who qualifies for Medicaid will receive a specialized care plan covering a range of services – palliative, counseling, respite, expressive therapy and bereavement providing them and their families greater comfort and peace of mind.

Media Contact:

Lynne Weil (DeGette) – 202-225-4431

Tracy Manzer (Speier) – 202-225-3531

Lizzie Litzow (McCaul) – 202-225-2401

Meaghan Lynch (Butterfield) – 202-225-3101

Tom Qualtere (Kelly) – 202-225-5406